In the midst of the Covid crazy, I had the chance to speak with Nita Clewis. We spoke about finding peace with our diagnosis and our challenges, while at the same time, continuing to meet those challenges through self-care. How do we stay focused on self-care in a crazy world - especially as we try to get things back to something that resembles normal.
It's June and that means it's Lipedema Awareness Month. I hope that you will be taking advantage of all the events that will be occurring online to educate us and the general public about lipedema. There's too much for me to list here, but you can use these links for information on these events:
From Lipedema Simplified: Lipedema Awareness Month Webinar Series 2021 (mykajabi.com)
From Lymphapress: Mind, Body & The Matrix: The Role of Pumps and Other Therapies for Lipedema - Webinar Registration - Zoom
Lipedema Patient Roundtable: Webinar Registration - Zoom
Webinar: Comprehensive Treatment for Lipedema: What You Can Do - Webinar Registration - Zoom
In the midst of the Covid crazy, I had the chance to speak with Nita Clewis. We spoke about finding peace with our diagnosis and our challenges, while at the same time, continuing to meet those challenges through self-care. How do we stay focused on self-care in a crazy world - especially as we try to get things back to something that resembles normal.
Nita goes over what her daily self-care routine looks like, and how she keeps herself motivated to do it every day, while I try to not beat myself up too much for not doing everything I should be doing. I'm sure this episode will strike a note with many facing lipedema and everyday self-care challenges. If you like more words of wisdom from Nita, you can find them on her blog - The Whole and Balanced Living blog at https://www.facebook.com/WholeBalancedLiving.
My cockatiels tried to join in the conversation too, so I apologize for the distraction. With or without them, I think you'll find Nita's advice helpful.
I also discuss the recent release of the U.S. Standards of Care for Lipedema. Other countries have had such guidelines for years, but the US has just released our very first guideline. This is really important stuff to read and to share with your medical providers. Worth noting - lipedema is being reclassified from a "fat disorder" to a disease of the loose connective tissue. This can really help how the medical community perceives the disease and hopefully will lead to more money for lipedema research and better health insurance coverage. You can find an abstract and link to the report here: https://journals.sagepub.com/doi/10.1177/02683555211015887?fbclid=IwAR3Stk9_GHF7JEbUTdRs40D01FTGRhswjczcLD2zJX4TYo3_Z3cjGSKOTzc
All podcast music courtesy of Jason Shaw at Audionautix - https://audionautix.com/index.php